MASTER

Sep 11, 2011 1:00p.m.-5:00p.m.

There are no remaining dates for this event.

Description:

Nathan and Bennett Falcone, two active, smart little boys with a condition so rare there are just two other children in the world living with the disorder. Nathan and Bennett, ages 5 and 2 live in Erdenheim, PA with their parents and older sister.

These brothers have been diagnosed with Mandibuloacral Dysplasia (MAD) which is a form of Progeria. Like Progeria, MAD is a progressive premature aging disorder characterized by hair loss, loss of body fat, thickening of the blood vessels, joint stiffness, dysmorphic facial features, extremely small stature and ultimately shortened life span.

The Progeria Research Foundation (PRF) was created in 1999 and is dedicated to finding a cure for children like Nathan and Bennett. In a short amount of time PRF has discovered the gene for Progeria. Clinical trials are underway, but time is of the essence for these children. Family and friends of Nathan and Bennett are reaching out to the community to raise money for the Progeria Research Foundation.

Join us as we Make a Splash for Nathan and Bennett!

Gift Basket Raffles - 50/50 Raffles - Kids Tattoos - Swimming

Guests are unable to bring food to the event. Food may be purchased at the The Flourtown Country Club's Snack Bar. A percentage of the purchases will be donated to the Progeria Research Foundation.

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150 McCloskey Road, Flourtown, PA 19031, United States

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150 McCloskey Road
Flourtown, PA 19031
United States

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